The need to be aware and beware of the genetic information nondiscrimination act.

نویسندگان

  • Mary Beth Steck
  • Julia A Eggert
چکیده

Genetic advancements have presented numerous discrimination predicaments to individuals, the healthcare community, and legislators at state and federal levels. Oncology nurses should be knowledgeable about the Genetic Information Nondiscrimination Act of 2008 (GINA) and its applications to clinical practice. GINA is the first federal law passed to protect U.S. citizens with inherited disorders from being treated unfairly because of their genetic makeup. Understanding the legislation known as GINA, including how it modifies existing federal laws governing health insurance coverage and employment discrimination, can assist oncology nurses in providing important education and advocating for patients and their extended families. Federal agencies that govern and enforce GINA's provisions are identified. Case situations are included to demonstrate how to apply information concerning GINA to patients with cancer and their families who are considering or have already completed genetic testing. Privacy of genetic information is a timely issue but difficult to understand; therefore, provisions of GINA should be addressed and evaluated carefully.

برای دانلود متن کامل این مقاله و بیش از 32 میلیون مقاله دیگر ابتدا ثبت نام کنید

ثبت نام

اگر عضو سایت هستید لطفا وارد حساب کاربری خود شوید

منابع مشابه

Evolutionary User Clustering Based on Time-Aware Interest Changes in the Recommender System

The plenty of data on the Internet has created problems for users and has caused confusion in finding the proper information. Also, users' tastes and preferences change over time. Recommender systems can help users find useful information. Due to changing interests, systems must be able to evolve. In order to solve this problem, users are clustered that determine the most desirable users, it pa...

متن کامل

Genetic Diversity and Population Structure of Liza klunzingeri from the Northern Persian Gulf Based on AFLP Analysis

The main purpose of this study was to investigate the genetic diversity and population structure of Liza klunzingeri in two regions of the Persian Gulf. In this study, the amplified fragment length polymorphism (AFLP) was employed to analyze population genetic diversity between two populations (Ziyarat & Hendijan). Seven primer combinations (E-AAG/M-CTA, E-ACT/ M-CAA, E-ACT/ M-CTA, E-AAG/M-CTG,...

متن کامل

Phenotypes for Prediction: Gene Expression and Genetic Exceptionalism

In the wake of the post-genomics era, United States legislators enacted the Genetic Information Nondiscrimination Act (GINA) of 2008 in an effort to combat looming threats of discrimination and to relinquish citizen‟s fears of genetic testing. GINA, like other questioned nondiscrimination laws before it, only protects genotypes. Multiple scholars have insisted these provisions are unjustified a...

متن کامل

Survey of companions of cancer patients about the need and how to express getting incurable cancer

Introduction: Expressing bad news in medicine is one of the most important measures taken by medical staff that should be given to patients in special circumstances that it is necessary to examine the views of companions and patients in this regard. Therefore, the aim of this study was to investigate the necessity and manner of expressing bad news (incurable cancer) from the perspective of canc...

متن کامل

Keeping pace with the times--the Genetic Information Nondiscrimination Act of 2008.

n engl j med 358;25 www.nejm.org june 19, 2008 2661 When the first federal legislation to prevent the misuse of genetic information was introduced in 1995, many in the health care, research, and policy communities considered the measure to be forward looking. Others called it premature. After all, scientists were just getting ready to start the sequencing of the human genome. Only about 300 gen...

متن کامل

ذخیره در منابع من


  با ذخیره ی این منبع در منابع من، دسترسی به آن را برای استفاده های بعدی آسان تر کنید

برای دانلود متن کامل این مقاله و بیش از 32 میلیون مقاله دیگر ابتدا ثبت نام کنید

ثبت نام

اگر عضو سایت هستید لطفا وارد حساب کاربری خود شوید

عنوان ژورنال:
  • Clinical journal of oncology nursing

دوره 15 3  شماره 

صفحات  -

تاریخ انتشار 2011